Benefits for People with Disabilities
- Disability Info for Americans Your online connection to the federal government’s disability-related information and resources
- Health and Disability Associates Wonderful website that explains in layman’s terms community resources for people with disabilities. Also, a great asset for people who have had their Federal disability benefits initially denied.
- Individuals with Disabilities Education Act (IDEA) IDEA guarantees that students receive help tailored to their unique needs.
- My child’s special needs for school (IEP) A Guide to the Individualized Education Program
- Social Security Benefits
- Yellow Pages for Kids with Disabilities Find resources available in your area
Epilepsy Resources
- C.U.R.E Citizens United for Research in Epilepsy
- Epilepsy and Water Safety Epilepsy and water don’t mix!
- Epilepsy Foundation Find your local Epilepsy Foundation chapter
- Lennox-Gastaut Syndrome Foundation An organization dedicated to raising awareness of Lennox-Gastaut Syndrome
- Partnership for Prescription Assistance A tool to help find patient assistance programs that you may qualify for.
- Raise Epilepsy
- Seizure Tracker Log and track seizure activity, appointments, and medication schedules through a simple calendar interface.
- Vagus Nerve Stimulation VNS Therapy is a non-drug treatment option that offers a unique safety profile and mechanism of action
- www.epilepsy.com Epilepsy.com is dedicated to providing the most comprehensive source of information, tools and community available online for patients, their families, healthcare professionals and the research community, and is a program of the Epilepsy Therapy Project;
Financial Assistance
- All Kids Covered Illinois’ Program to Provide health care to All Kids
- SCHIP State Children’s Health Insurance Program
- Social Security Benefits for children with disabilities
- The Families of Children With Disabilities Plan a program with Merrill Lynch through their Families of Children With Disabilities program
Medication Assistance Programs
- Needymeds A list of programs that assists people who cannot afford medicine or healthcare costs
- Partnership for Prescription Assistance A tool to help find patient assistance programs that you may qualify for.
Recreation
- Center for Courageous Kids A stellar medical camping facility, designed specifically for the child with medical challenges and his/her family members, at no cost to them. Located in Scottsville, KY.
- Summer Camps
Safety Sites
- Adaptive Mall Special needs equipment - keeping your child safe
- Emfit Technology Movemont Monitor for bed
- Pawsibilities Unleashed Seizure Alert Dogs
- Sleep Safe Anti Suffication Pillow
- Stick J Jewelry Medical Alert Bracelets
- X-10 Video Camera Video Camera to capture seizures during sleep
Special Education Laws
- Special Education Law Blog Special education legal resource. Charles P. Fox, Special Ed Advocate and father of a special needs child.
Suggested Reading
- Achieving Victory Over a Toxic World by Mark Schauss
- Epilepsy: 199 Answers: A Doctor Responds to His Patients’ Questions (Paperback) by Andrew N. Wilner
- Epilepsy: Patient and Family Guide (Paperback) By Orrin Devinsky
- Hard Choices: Whether and How to Address SUDEP With Epileptic Patients
- Keto Kid: Helping your child succeed on the Ketogenic Diet (Nov. ‘06) By Deborah Snyder
- Mark Schauss’ Blog
- The Ketogenic Diet: A Treatment for Children and Others with Epilepsy (Oct ‘06) by John M. Freeman, Eric H. Kossoff, Jennifer B. Freeman, and Millicent T. Kelly
Support Groups
- Charlie Foundation Ketogenic Diet Resources
- Coping-with-epilepsy Free Forum Community
- International Dravet Syndrome Epilepsy Action League The IDEA League is an international partnership of parents and professionals united in the purpose of creating greater awareness and understanding of Dravet Syndrome and the spectrum of genetic, febrile sodium channel epilepsies
- Lauren’s Miracle A wonderful Ketogenic Diet success story
- Matthews Friends To aid and support parents through our own experiences with our children in managing the Ketogenic Diet
- Yahoo Groups Connect with a world of people that share your concerns
Therapies