Blogs

Margaret StoreyFree Your Mind - Margaret Storey's Blog

Margaret Storey holds a Ph.D. in history from Emory University and is an Associate Professor at DePaul University. She lives in Chicago with her husband and daughter, who has Aicardi Syndrome, a rare condition that causes intractable epilepsy and a range of physical and developmental disabilities.

Free Your Mind Blog
09/24/2009 - Chronic Disease Survey
09/03/2009 - Seizure Monitor & Seizure Mat
05/17/2009 - Seizure Monitors ? Update
04/14/2009 - Seizure Monitors
04/14/2009 - Epilepsy: Insights and Strategies
02/25/2009 - UCB Family Epilepsy Scholarship Program
02/25/2009 - Seizure Emergencies: Do You Know What to Do?
02/25/2009 - Welcome to “Free Your Mind”

 

Arlene MartellEpilepsy Moms - Arlene Martell's Blog

Arlene Martell is a mother of 4, including Adam who was diagnosed with Lennox Gastaut Syndrome at age 4. Today at age 22, Adam is seizure free and drug free for more than 10 years. Arlene publishes a website, www.EpilepsyMoms.com and wrote an ebook called “Getting Adam Back” to share her story with others about alternative treatments for Epilepsy and Autism. Arlene lives near Vancouver, B.C., and was one of the founders and President of The Center for Epilepsy and Seizure Education in B.C. and helped produce television PSA’s to educate the general public about Epilepsy.

Epilepsy Moms Blogs
09/30/2009 - A Successful Start To The School Year!
06/03/2009 - Food Allergies Could Play A Big Role In Your Child’s Health!
05/05/2009 - Why Do 25% of Kids with Epilepsy have Autism?
04/24/2009 - My Favorite Poem For Special Kids
04/24/2009 - Ten Tips For Raising A Child With Special Needs!
03/10/2009 - Mother Shares Her Story of Hope


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Epilepsy is the most common neurological disorder in children, often causing damage to the developing brain and causing premature loss of life. Sadly, public perception is that epilepsy is a benign condition that is easily treated, and this is why research efforts have lagged far behind where they should be, given the prevalence and devastation of epilepsy. I applaud the Leyden family for their courage in sharing their personal story. I know that by doing so they will help to raise awareness of the millions of other families who are also desperately seeking answers for their children.

Susan Axelrod - Founder of C.U.R.E.